Appointment with the new GI was AWFUL!
Emily's history was taken by a medical student. This didn't bother me at all, but what happened next did. Em was stinky, so I put her on the table to change her. The student literally took over and changed her diaper. The manner in which he did this made me very uncomfortable, and I kept trying to wedge in there, but he was saying he had a 14mo daughter of his own, he was used to this. When ever I have changed a stinky or witnessed someone else changing a stinky, it was relatively quick, not a long, drawn-out process that this was. I got the impression he was enjoying it. This was a time where I will kick myself forever for not being more assertive by taking her away from him.
The student left with Em's history (including the print out that I posted below) to consult with the doctor. She came in, felt Emily's tummy, and left to get the dietician. The dietician came in and suggested yet another type of Neocate (despite the history of blood in stool after our last JR trial). She said that there is no way Em could be reacting to Neocate because it is elemental and has no allergens in it. (Exact same speech I got from the Neocate company.) I'm supposed to try the juice box version (E028) once per day. She asked about crackers, I mentioned that she reacts to all that she has tried, very recently Goldfish, and she told me to try animal crackers. I'm also supposed to add butter, white rice, turkey and chicken. (I will try rice again, and introduce chicken and turkey.) We talked a bit about offering diluted juice and offering new foods many times because Emily is at the age where she will naturally refuse new things.
The doctor came back in and said, "Part of being a social human is to eat with other people." She then basically lectured me about offering food to Emily, and that I may have to present a new food 20x or more until she takes it. (DUH!) She totally disregarded my statement that Emily WANTS TO EAT, she just reacts to EVERYTHING now! She told me she thought that the rash was due to bile acids, not an allergic reaction. I asked her not to discount the allergy factor because our son's main physical reaction to an allergen was a severe diaper rash. I gave the example that when our son was exposed to my sister's dog while we were visiting her, he broke out into this same type of rash. (Our son is severely allergic to animals.) She actually laughed in my face about that. (What's FUNNY is that when we removed the allergen in both cases--JR for Emily and the dog for our son, THE RASH WENT AWAY!) The doctor never asked about Emily's bloodwork or prior tests, and she did not even mention any other testing. She also never brought back up the blood or diarrhea and vomiting--NOTHING!
Emily's follow-up appointment with her is in FOUR MONTHS! I just don't know how this doctor could read Em's history, never really ask about anything, and then come to the conclusion that we should just start feeding her. AS IF WE HAVE NOT BEEN TRYING TO FEED HER!
I left the appointment and called my husband in tears. Why can't we find someone to help us?
The student left with Em's history (including the print out that I posted below) to consult with the doctor. She came in, felt Emily's tummy, and left to get the dietician. The dietician came in and suggested yet another type of Neocate (despite the history of blood in stool after our last JR trial). She said that there is no way Em could be reacting to Neocate because it is elemental and has no allergens in it. (Exact same speech I got from the Neocate company.) I'm supposed to try the juice box version (E028) once per day. She asked about crackers, I mentioned that she reacts to all that she has tried, very recently Goldfish, and she told me to try animal crackers. I'm also supposed to add butter, white rice, turkey and chicken. (I will try rice again, and introduce chicken and turkey.) We talked a bit about offering diluted juice and offering new foods many times because Emily is at the age where she will naturally refuse new things.
The doctor came back in and said, "Part of being a social human is to eat with other people." She then basically lectured me about offering food to Emily, and that I may have to present a new food 20x or more until she takes it. (DUH!) She totally disregarded my statement that Emily WANTS TO EAT, she just reacts to EVERYTHING now! She told me she thought that the rash was due to bile acids, not an allergic reaction. I asked her not to discount the allergy factor because our son's main physical reaction to an allergen was a severe diaper rash. I gave the example that when our son was exposed to my sister's dog while we were visiting her, he broke out into this same type of rash. (Our son is severely allergic to animals.) She actually laughed in my face about that. (What's FUNNY is that when we removed the allergen in both cases--JR for Emily and the dog for our son, THE RASH WENT AWAY!) The doctor never asked about Emily's bloodwork or prior tests, and she did not even mention any other testing. She also never brought back up the blood or diarrhea and vomiting--NOTHING!
Emily's follow-up appointment with her is in FOUR MONTHS! I just don't know how this doctor could read Em's history, never really ask about anything, and then come to the conclusion that we should just start feeding her. AS IF WE HAVE NOT BEEN TRYING TO FEED HER!
I left the appointment and called my husband in tears. Why can't we find someone to help us?
posted by Fran | 2:24 PM
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