Emily's Story

This is the story of our baby, Emily, and how she is coping with Failure-To-Thrive issues.

Name:

My name is Fran, and I am a Mom and homeschooler to three wonderful children. I enjoy spending time with them and my loving husband and spoiled rotten Samoyed pup. I am also a post-graduate student working on Doctorate in Education. I am passionate about Early Intervention Services for special needs children. Early Intervention works!

Tuesday, July 25, 2006

Emily's Brief History

This is the information that I typed up and brought to the new GI appt:

Pregnancy and delivery:
- Maternal infections treated with antibiotics-BV, bronchiolitis, UTI, GBS+
- Preterm labor treated with Terbutaline, bedrest from approx 20 weeks
- Phenergan and Zofran throughout, Ambien as needed throughout
- Induced birth at 37 weeks, no complications

Newborn:
- at 1 week check, pedi noted that anus was small, not worrisome, labial adhesions (continuing)
-Jaundice, hospitalized at 5 days old, phototherapy, breastmilk interrupted for 24hrs with Nutramigen
- extremely fussy baby, treated for reflux around 6 weeks-Zantac, improved, removed around 4mo
- stools never seedy, mucousy
- thrush (continuing)

5 months to 10 months:
- At 5mo tried cereal, okay for 2 days, 3rd day bloating, tummy pain, vomiting, gas, even plain rice cereal caused issues
- 6mo, again extremely irritable, given Axid-complete 180-happy baby! Still unable to handle cereal after 2 days
- 6mo check-up, referred to GI for possible FTT and food issues.
- 8mo, first appt with GI, advised to supplement with Pregestimil 2oz/day. Dx with FTT, slightly stunted and wasted, switched to Pepcid, ordered upper GI for reflux (negative)

Pregestimil trial: Complete refusal to nurse (teething and thrush), unable to express enough for demand, on Pregestimil only by 7mo.
- Projectile vomiting and diarrhea almost daily with Pregestimil.
- Began coughing, gagging, choking and vomiting multiple times per day
- Not gaining, sliding down growth chart
-Able to tolerate sweet potatoes, french fries, green beans, peas, carrots, no fruits

10 months to present:
- Rotavirus 1 day after turning 10mo old, hospitalized for 6 days, fell under 12lbs
- Introduced Neocate just before leaving hospital, very well tolerated
- Began gaining and growing appropriately on Neocate only
- At 11 months began projectile vomiting, diarrhea, choking, bloating cycle again. Noticed that Neocate had changed to a new label, made calls to find that the formula changed. Tried to slowly introduce, untolerated.
- Grows well, symptom free with old version Neocate only

Formula failures:
- Neocate 1+, 5 days, coughing, gagging, vomiting/diarrhea/bloating (v/d/b), rash
- Elecare- unable to get to more than 2 parts Elecare to 3 parts Neocate, severe rash, v/d/b
- Neocate Jr-longest trial 2+ weeks (June 06), also no more than 2 parts to 3 parts, nighttime vomiting only, diarrhea, worst rash, mucous in stool, dark blood in stool on last day of trial. During this trial, soaking diapers—would wake up in middle of the night soaking, soaking again by next morning
- Within 4 days of removing JR, rash almost completely gone, no blood, no diarrhea—all symptoms stopped.

Curently:
- Now reacting to fries in peanut or soy bean oil, sweet potatoes, refusing other baby foods. Soaking diapers after exposure to fries, etc. Exposure to 1 Dorito chip and 2 Goldfish crackers (separate occasions) led to bloating, diarrhea, return of rash.

Allergies:
Medicine: no known allergies, both siblings allergic to penicillin
Food: Corn, skin testing

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